Monday, September 24, 2012

Dexa Round 2

In my last post, I had mentioned about Megan being on steroids. The whole episode is now over and done with. At the peak of the second round, she insisted to having delicious (the restaurant!) everyday! Everyday she will go and ask for the Homemade pesto spaghetti and crispy fried mushrooms. Usually she can't finish the pesto and will have it packed, but she will still insist on having the carbonara too!

After eating a couple of nights with her, we (as in the whole family) could not stomach it anymore and so we had to sit and watch her eat! We were at the same store for 9 out of 10 days! It got to the point the waiters and the waitresses know her name and her orders and the cheese she requests for!

At home, she will ask for pizza. We make this with her choice of mushrooms and lots of cheese on bread. She will sit (im)patiently in front of the oven and wait for the dial to sound so she can eat it! Her mushrooms filled my fridge cause she wanted the fresh ones - Japanese ones, enoki, button mushrooms etc. We also loaded up on blocks of cheese for her to scrape and eat. Sliced cheese also came in and got eaten fast!

She also had a thing for spicy noodles - Cintan. Mamme curry noodles. And she would sit patiently and cut her mushrooms and then insist it is in her noodles. She also drank loads of milk - fresh, powdered and chocolate ones!

Eggs are another favourite. She also enjoys her taugeh. Needless to say, my fridge was fully stocked!

The last time, her obsession with food was much more specific. She wanted her pasta, cooked with cream. Taugeh, stir fried with mushrooms. She also wanted roti canai and chee cheong fun. Each time we go out to buy her food, she would clutch the food with her hands despite not being able to hold all. The obsession then was very intense.

We are due for another course of this med next month. Thankfully, it is a shorter dose. We have another injection to undergo for this protocol on Wednesday, and then we are done! The next protocol is easier, just oral meds and lesser trips to the hospital. Hope all will continue to go well for Megan. God bless!


Tuesday, September 4, 2012

Megan on steroids

My little Megan is on her steroids again. This time, for 2 weeks. 

The first month, we had it for the whole time and the effects came in after the first week. The most obvious change was her silent mode. She refused to talk nor see me. Her only conversation was to tell us what she wanted to eat, how to cook it and her breast milk. 

She also became withdrawn. It was very difficult for me to accept my baby has changed. It was like I lost her. Then the next change was her water retention and she became huge. Her dresses and clothes all did not fit. We had to use some of Ryan's clothes on her. 

Her hair loss was bad too and we decided to shave her. In the peak of it, she became violent to her dad as well as to herself. She began scratching and screaming and left bloody scratches on herself. 

Which was why we were worried about the meds this time round. The dose has been increased from last time, although for a shorter period. This is the second week. So far, not much violence nor appetite increase. 

Some say it is because her body is used to the meds combo and no longer showed the initial signs. But the last few days she has displayed a zone in zone out mode. One moment she will be happy and talking, then the next, she will zone out and give me a faraway look. This look is the killer. Her eyes will open wide and stare at me deep down, as if asking "What is happening to me mama? What is wrong with me?" I always have to look away cause tears will come to my eyes. I hate it. Thankfully, she zones back in fast. 

Then yesterday, her mood changed when it was getting dark. She insisted that I tell the sun not to go and sleep. She wants it back on the sky cause she wants it to be morning!

Today, she asked me to tell the crows to stop making the sound cause it interfered her clothes folding. 

Both times, I smiled. It was so cute. It was also kind of scary cause she was in tears and begging. But this time, I know this period will pass. I know if I hold on, it will come to an end and my baby will be back. 

I wish for the week to go by quickly. Can't wait! 

Sunday, September 2, 2012

Long Merdeka Weekend

31st August was our nation's 55th birthday, but it did not feel much of a celebration to me. I remember when I was small, Merdeka Day was a very big affair. Because it is a holiday, I get to watch TV and the parade that was going on live. I loved the different costumes and the crowd cheering and I have always wanted to grow up and go there to witness it live. 

But somehow, after growing up and living so close, this desire died off. I am not sure if it is because of other things in my way, or Merdeka Day does not seem to be an event anymore. More so, when I look at the state of affairs in the country. Sometimes I wonder if it was better to have been ruled by the British and not gotten our freedom. 

Look at how Hong Kong has flourished under their rule. Small tiny dot on the map of the world, and yet they have so much riches. By comparison, we have so much more, yet our country has little significance to the outside world. 

The main inheritance from the British which is the English language itself has been politicized by the ruling party, what a shame. To deprive its citizens of learning the language used by the world in favour of a language used mainly in Malaysia. Isn't that interesting now? 

And what about the famous changes which happened to our country's history in our kids' text books? 

I did not even bother to switch on the TV and show my kids any parade. It is such a pity. All the fights our nation's leaders did over 55 years ago seems to have been forgotten. 

What about you? How has the long weekend been? My kids had lots of fun. We went to 1Utama, got to do plenty of rides and toy shop visits. Saturday was a day at the hospital for Megan and drama class for Ryan. We had church service and my parents came to visit. Today we had water play at home and Hungry Ghost festival air pollution happening. 

The kids are all tired out. I am too. It has been a long weekend. Thank you Malaysia for the holiday, I hope next year we will see some changes.